Registration
Aarskog
English English
en Englishaf Afrikaanssq Albanianar Arabichy Armenianaz Azerbaijanieu Basquebe Belarusianbg Bulgarianca Catalanzh-CN Chinese (Simplified)zh-TW Chinese (Traditional)hr Croatiancs Czechda Danishnl Dutchet Estoniantl Filipinofi Finnishfr Frenchgl Galicianka Georgiande Germanel Greekht Haitian Creoleiw Hebrewhi Hindihu Hungarianis Icelandicid Indonesianga Irishit Italianja Japaneseko Koreanlv Latvianlt Lithuanianmk Macedonianms Malaymt Malteseno Norwegianfa Persianpl Polishpt Portuguesero Romanianru Russiansr Serbiansk Slovaksl Slovenianes Spanishsw Swahilisv Swedishth Thaitr Turkishuk Ukrainianur Urduvi Vietnamesecy Welshyi Yiddish
  • Banner
Bringing Aarskog families together, because together we can make a difference.
International Aarskog Awareness week 29th September - 4th October 2019

International Aarskog Awareness week
29th September - 4th October 2019

Are YOU Aarskog Aware? #AskAboutAarskog?

#AarskogSyndrome #AarskogPatients #AarskogUK #AarskogUSA #AarskogEurope #AarskogAsia

The Aarskog Foundation

We are the worlds largest international parent led, patient Charity for the X-linked Rare Disease Aarskog Syndrome.

The lives of around 0.4 per million people across the world are living with this Rare Disease, which progresses into a serious life long condition of which to date there is no known cure.

become a member read more

Fundraising

Fundraising

You can help Aarskog Syndrome children by offering meaningful ways you can make a difference. We are recruiting for a new Trustee as Treasurer.

read more

Become a member

Become a member

Join the Aarskog Foundation and receive membership benefits such as our full range of discussion groups and discounts on events.

read more

Events

Events

Click here to view the latest events The Aarskog foundation is hosting or involved with with information on how to get involved.

read more

Get in touch

  1. Please type your full name.
  2. Please type a valid email address.
  3. Please enter a telephone number.
  4. Invalid Input
  5. Your data will be stored and used to contact you regarding your enquiry. Read our privacy policy on how we use your data.
  6. To submit this form you must give your consent.
  7. This form is protected by Google Invisible reCAPTCHA.
    Privacy | Terms

Contact us

Call 0800 001 6623

support@aarskogsyndromefoundation.co.uk

fb bottw botlk bot

Ask About Aarskog Question Mark Orange

MAKE A DONATION

To make a donation, text  'AARSKOG'  to 70085 to donate £5. This costs £5 plus a std rate msg.
Alternatively, you can opt to give any whole amount up to £20. Thank you!

"Bringing Aarskog families together, because together we can make a difference."

 

Donate