The global alliance for people living with Aarskog Syndrome
Scottish charity working across 34 countries, supporting children and
individuals diagnosed with this rare genetic condition.
Scottish charity working across 34 countries, supporting children and
individuals diagnosed with this rare genetic condition.
We are a Scottish charity that powers a patient and parent run network of children and families living with Aarskog Syndrome.
Our primary purposes are in identifying and supporting our patients, carriers and families living with Aarskog Syndrome, by creating better provision and support regarding access to long term, lifelong healthcare and management, education and improved research pathways.
Here is a step-by-step guide on the best care plan you can take if you suspect your child has Aarskog Syndrome. Remember, we are here every step of the way to provide you with a kind network, educational assets, a helpline and testing and medical support.
There are countless ways in which you can show your support towards our cause and help us help many children and individuals in need. From volunteering to buying our merch, every little gesture can make an impactful change.
You can always get in touch with us for support, volunteering opportunities or just to share a smile.
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