Non-profit News

10 years ago Michelle Erskine had a vision to bring parents together from around the world to better understand Aarskog Syndrome and to support one another. "The Aarskog Syndrome group” as a Facebook group started in 2008.

In 2017, she had a vision to start a sister to The Aarskog Foundation in the UK, The Aarskog Foundation USA, a nonprofit that would directly benefit the Aarskog Community while working with other existing nonprofits.

After much planning, organizing, hard work and patience, we are proud to announce -

The Aarskog Foundation is officially a 501(c)(3) nonprofit organisation.

What does this mean for you? First, it means donations you (U.S. Citizens) make to us are now tax deductible. It means we are exempt from paying federal taxes and we can focus our funding efforts towards programs, services and financial assistance for patients and families. It means we have proven to the IRS that the work we are doing, and will continue to do, serves the public.

Finally, it means we are now qualified to seek out grants to help fund our organisation and provide additional services directly to you, Aarskog patients and caregivers.

Receiving our 501(c)(3) nonprofit status from the IRS is a huge turning point for us, but it did not come without much hard work, anxious waiting from our Board of Directors. 

This is where the hard work begins. We will begin more in-depth planning to determine how to best serve our Mission within The Aarskog Foundation community. We will be reaching out to other nonprofits to work together in making awareness and assistance priority one. We are already working together with Global Genes and have had other organisations express their interest.

Remember that YOU are a huge part of this! None of this would ever have been possible without you — our fans, supporters, families and friends. Please give yourselves a well-deserved pat on the back.

If you are interested in making a financial contribution that is now tax-deductible, please use the link below.

We appreciate your continued support!

We also offer Aarskog Foundation products such as t-shirts, hoodies, white butterfly pins, wristbands, pens and info cards, with additional products coming soon. The sale of products helps us to help you, whilst providing an opportunity for you to spread awareness of our Rare Disease.

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