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Treasurer/Chair - Voluntary Position

Do you have previous experience of chairing at committee level?

Do you have charity finance or social / health care services finance experience?

Would you like to join a dynamic and growing family support charity?

As a Treasurer/Chair on The Aarskog Foundation board, you will maintain the overview of the Charity’s affairs. You will also support the strategic planning and provide guidance to help ensure financial viability, and support the requirements underpinning proper financial governance and procedures.

You will be expected to attend the Board meetings, which are held six times a year (majority of are virtually). Alongside this, you will work closely with our founder and CEO to ensure financial stability of the foundation as well as protecting the assets of the Charity.

To be successful you will have previous experience of chairing at committee level, have an understanding and acceptance of the legal duties, responsibilities and liabilities of Trusteeship and be able to analyse proposals and examine their financial consequences. It is also desirable if you have experience of demonstrating leadership skills during a period of change.

The Aarskog Foundation is the world's first and only international, parent led, patient Charity for the X-linked Rare Disease Aarskog Syndrome. We are based in the UK but support families across 34 countries and counting. We provide advice and assistance to patients and families. No two days will be the same and you will be at the forefront of helping drive the foundation towards its goals.

If you wish to apply to please email your CV and a cover letter to This email address is being protected from spambots. You need JavaScript enabled to view it..

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