FGD1 Aarskog Syndrome Girls

As part of the foundation's work, we set up a group in 2019 called FGD1 Aarskog Syndrome Girls. The aim was to help the women within our Aarskog community who were confirmed as being a carrier of the FGD1 gene. As Aarskog is an X-linked rare genetic condition, it means the FGD1 gene which causes Aarskog is located on the X chromosome. Females have two X chromosomes; males have one X and one Y chromosome. Often carriers are overlooked by the medical industry but within our group, we have seen many women present similar conditions and symptoms related to autoimmune diseases. 


Come say hello

  1. Please type your full name.
  2. Please type a valid email address.
  3. Please enter a telephone number.
  4. Invalid Input
  5. Your data will be stored and used to contact you regarding your enquiry. Read our privacy policy on how we use your data.

Contact us

fb bottw botlk bot